Tessa Marie
Our Story
I am a Mom of five writing about life. There are things that you think will happen a certain way. There are things that you think will just be the way they are supposed to be. There are things you dream about and then there are the plans that you make. But then those things change. Things don't happen a certain way. And things aren't the way they are supposed to be. Your dreams have to change. My story is about when perspective changes, your world tilts and nothing goes according to plan.
Tessa has been my inspiration. In March of 2023, at eleven months of age, we learned that Tessa has FOXG1 - a rare neurological condition that affects brain development. We learned that our daughter may not walk, may not talk and that her body will be unable to do what it wants to do. With FOXG1, one may have low muscle tone, involuntary muscle movement, vision impairment, (possible) seizures, feeding and sleep issues.
Our entire life has changed, as well as our family's perspective. WIth this new diagnosis and outlook on life; we have two choices - we can crumble and fall or we fight.
We choose fight. Tessa will only make us stronger, and only make us better. Tessa is the reason I wrote a book, she is the lens of which we now see life, she is this path we now walk.
She is our Fox and Our Fox Rocks
I always welcome what you have to say. What you have to share. Advice, questions or answers. And I thank you so much for being part of my perspective.